ABOUT US

THE PAIN

When a kidney stone starts to move and without any previous indication, the sufferer may experience sudden excruciating pain and lose consciousness. The pain may re-occur over a number of days or weeks or months but will only stop when the kidney stone is passed. Even then the sufferer may still experience cystitis and/or a kidney infection. Any sufferer may create more than one kidney stone and then the above is repeated again and again until the end of life.

If you would like to find out more please see our recent blog post How painful is it to pass a Kidney Stone?
RESEARCH

From the web site of the London Urology Associates who have published over 300 research papers in scientific journals and are actively involved in clinical research and teaching write, "Some people also appear to have a tendency towards stone formation for different reasons. Once you have formed a stone, there is an increased risk of you forming more stones. 

The prevalence of the disease is between 2% and 3% of the population and it is estimated that the likelihood of a Caucasian developing a stone by the age of 70 is approximately 1 in 8. Acute renal colic (pain) is common and often a recurring condition with an annual incidence of 1 - 2 cases per 1000 and a lifetime risk of 10% to 20% for men and 3% to 5% for women.

Approximately 25% of people with kidney stones have a family history of kidney stones.
Men suffer more stones than females (3 to 1). The peak incidence is between 20 and 40 years of age.
Geography: the prevalence being the highest when living in mountainous regions, deserts and tropical areas.
Climatic: stone formation is the highest during summer months.
Diet: certain foods that are absolutely necessary also increase the likelihood of stones."  

RESEARCH

From the web site of The British Association of Urological Surgeons Ltd who write, "Kidney stones are found in 2%-3% of people and 0.5% of people present each year with an acute episode of pain due to stones; these rates have been rising steadily since the start of the 20th century.

Men are more commonly affected than women. After the age of 50 then the sex distribution becomes equal;
At the age of 70, you have a lifetime risk of 1 in 8 for forming a stone;
Stones are responsible for more than 12000 hospital admissions each year;
Stone formation is governed by both intrinsic (heredity, age and sex) and extrinsic factors (geography, climate, water intake and diet);
Poor fluid intake combined with low-roughage, high protein diet containing a lot of refined sugar increases the risk of stones.
There is an association with the "metabolic syndrome" (Syndrome X)
Recurrence rates for stones are high (20% at 5 years, 35% at 10 years and 70% at 20 years)
 
WHAT YOU CAN DO TO HELP THE RESEARCH

This suggestion may provide answers for kidney stone sufferers in the future?

How about starting a food intake diary? It will be easy to start and probably very difficult to maintain over a long period. To pass one stone is bad enough but to pass a second is really one too many! The following basic information will help the Researcher: 

Date of birth 
Male/Female 
Area of the country. For example the post code for Beat Kidney Stones is EX34 0HJ. Please record the part of your post code that is equivalent to EX34.

On a daily basis please record the following: 

Date; 
Time for each meal - content and quantities and how cooked; 
quantity and types of liquids drunk. 

Please be honest because a food or drink perceived to be bad for us but very nice to consume may turn out to help reduce the likelihood of further kidney stones; and vice versa. 

 If any sufferer or Researcher wishes to offer further comment then please do so?
 
DONATE TO HELP THE FIGHT AGAINST KIDNEY STONES

OUR INSPIRATION 

Our inspiration for creating this charity was Margaret who passed 47 stones over 29 years.

Every kidney stone meant excruciating pain, potential bladder and kidney infections and possible kidney damage and failure. Kidney stone pain is ranked as one of the top 3 pains to endure along with a heart attack and a gall stone. Some kidney stones were so painful for Margaret to pass that losing consciousness happened regularly.

Imagine the number of x rays that were taken of Margaret to establish the cause and site of the pain? 
Imagine the numbers of anti-biotic pills that were taken by Margaret to cure infections like cystitis and to protect her kidneys?
Imagine having a full bladder, desperate to urinate but not able too because a stone is blocking the flow?  

The final indignity was that Margaret was diagnosed with terminal cancer and during her last 7 weeks here she had to pass a kidney stone - not even in her last few weeks was she spared the additional pain of passing a kidney stone.

Margaret listened to medical advice and tried to research as much as she could to try and reduce the frequency of kidney stones: she took regular exercise and drank copious amounts of water but she struggled to find the help and support she needed and that's why we wanted to create this charity - so that no one else will have to suffer like her.
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